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e-1635

Petition to the Government of Canada

Whereas:
  • 15 other countries, including the United States, France, Germany, Sweden and Italy, have already approved Spinraza as a treatment for patients with Spinal Muscular Atrophy (SMA);
  • Health Canada has already approved Spinraza for the treatment of SMA;
  • Through clinical evidence, Spinraza has shown to reduce the risk of death and improve motor and respiratory functions;
  • Long-term monetary and social costs to the provinces without the use of Spinraza will be higher due to eventual invasive and costly procedures that otherwise could potentially be avoided;
  • Treatment of SMA of any type should be started as early as possible to prevent disease progression and ultimately save life as well as improve quality of life.
We, the undersigned, citizens and residents of Canada, call upon the Government of Canada to overturn the decision of CADTH and ensure Spinraza is approved for all types of SMA so that provincial governments can negotiate for a price for all Canadians with SMA.

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