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e-2971 (Human diseases)

E-petition
Initiated by Norman MacIsaac from Montréal, Quebec

Original language of petition: English

Petition to the Minister of Health

Whereas:
  • ALS is an incurable, terminal disease;
  • Parliament unanimously passed Motion 105 in April 2017: “That, in light of the death of over 1000 Canadians each year, including the tragic loss of the Honourable Mauril Bélanger, former MP for Ottawa—Vanier on August 16, 2016, as a consequence of Amyotrophic Lateral Sclerosis (ALS), the House (a) reiterate its desire and commitment to, in collaboration with provincial and territorial stakeholders, combat ALS via research and awareness; and (b) call upon the government to play a leadership role in supporting ALS research, and to support national efforts to find a cure for ALS at the earliest opportunity.”;
  • The development of ALS treatments is at a tipping point;
  • Over ninety treatments are in clinical trials, and a half a dozen treatments will likely be seeking approval in 2021;
  • Observers have been awed by anecdotal evidence of the efficacy of stem cell treatment, and other treatments have shown remarkable results in slowing or even stopping certain forms of ALS; and
  • Recent experience shows that, following approval by Health Canada, it takes an additional 18 to 24 months or more to make an ALS treatment available to Canadian patients in provinces and territories.
We, the undersigned, patients, caregivers, friends and family affected by ALS, call upon the Minister of Health to create a pilot project to reduce the delay in obtaining access to innovative Health Canada approved ALS treatments to maximum 3 to 6 months; this pilot project, in collaboration with other national, provincial and territorial stakeholders, could pave the way for timely access to innovative treatments for other devastating, incurable and terminal conditions.
Open for signature
November 6, 2020, at 2:13 p.m. (EDT)
Closed for signature
January 5, 2021, at 2:13 p.m. (EDT)
Photo - Heather McPherson
Edmonton Strathcona
New Democratic Party Caucus
Alberta
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