Petition to the House of Commons in Parliament assembled
Diffuse Intrinsic Pontine Glioma (also known as DIPG) is a highly aggressive brain tumour found in the brainstem which controls vital functions (including breathing, the ability to walk or swallow) while losing no cognitive function. It is inoperable and incurable with a 100% mortality rate. It accounts for 10% of all childhood central nervous system tumours and 80% of brain tumour deaths in children. It occurs equally across gender and at any age in childhood, although typically between 5 - 10 years old;
There is at present no cure for DIPG. Current research is dedicated to both finding a cure and better treatments to improve the longevity and quality of life for those children diagnosed with DIPG;
Despite dedicated government funding to support research developments in targeted therapy and novel treatments, the disease itself remains largely unknown or misunderstood to the general public of Canada. Most people are unaware that DIPG is the leading cause of brain tumour death in children, often not finding out about this disease until they know someone to whom it affects; and
The declaration of May 25th as a National DIPG Day of Awareness would help to educate the public about the prevalence and severity of this disease, encourage funding to support ongoing research, increase dialogue in the professional medical community, further publicize and promote Canada's involvement in the fight against DIPG, and honour the victims of this terrible disease.
We, the undersigned, citizens and residents of Canada, call upon the House of Commons in Parliament assembled to declare May 25th as the National DIPG Day of Awareness across Canada.
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