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e-1635 (Health care services)

E-petition
Initiated by Kira Palmer from Calgary, Alberta

Original language of petition: English

Petition to the Government of Canada

Whereas:
  • 15 other countries, including the United States, France, Germany, Sweden and Italy, have already approved Spinraza as a treatment for patients with Spinal Muscular Atrophy (SMA);
  • Health Canada has already approved Spinraza for the treatment of SMA;
  • Through clinical evidence, Spinraza has shown to reduce the risk of death and improve motor and respiratory functions;
  • Long-term monetary and social costs to the provinces without the use of Spinraza will be higher due to eventual invasive and costly procedures that otherwise could potentially be avoided;
  • Treatment of SMA of any type should be started as early as possible to prevent disease progression and ultimately save life as well as improve quality of life.
We, the undersigned, citizens and residents of Canada, call upon the Government of Canada to overturn the decision of CADTH and ensure Spinraza is approved for all types of SMA so that provincial governments can negotiate for a price for all Canadians with SMA.
Government response tabled on November 28, 2018 (Sessional Paper No. 8545-421-31-52)
Open for signature
April 23, 2018, at 4:44 p.m. (EDT)
Closed for signature
August 21, 2018, at 4:44 p.m. (EDT)
Presented to the House of Commons
Tom Kmiec (Calgary Shepard)
October 17, 2018 (Petition No. 421-02756)
Government response tabled
November 28, 2018
Photo - Tom Kmiec
Calgary Shepard
Conservative Caucus
Alberta